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ABSTRACT
This article presents a platform for securely collecting and sharing data related to chronic disease. It highlights patient-centric technology and the role of patient consent for access to their data. Based on the blockchain, the platform will facilitate therapeutic compliance and self-management of chronic disease by providing the patient with a community of health professionals, family members, friends and colleagues
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Read the articleAUTHOR
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Schallum PIERRE: President of the non-profit organization Réseau d'expertise en éthique de données (formerly Blockchain Citiz), scientific and ethics officer at Université Laval's Institut intelligence et données (IID), part-time professor at Université Saint-Paul, member of the editorial board of the journal Technologie et innovation, member of Université de Montréal's Réseau intégré sur la cybersécurité and member of the ethics committee of CHU de Québec-Université Laval, Canada.
INTRODUCTION
The administration of health data, and particularly chronic disease data, is a major public health issue for Canada. In fact, 44% of of the Canadian population lives with one or more chronic diseases, which account for 65% of all illnesses. of deaths in the country. To improve the situation, this article proposes a secure data-sharing system created by Blockchain Citiz, a Quebec-based civic startup specializing in blockchain technology, in collaboration with the Centre hospitalier de l'université de Montréal (CHUM). The system is designed to support patients in following medical recommendations. Firstly, the article discusses four issues relating to the administration of healthcare data in general, and chronic disease data in particular. Secondly, it considers the Citiz blockchain solution based on the support of a community around the patient. Thirdly, it presents blockchain technology. Finally, it shows the relevance of blockchain for the security and control of exchanges between the patient and his or her community.
Key points
Field: Biomedical-pharmaceutical, information technology
Degree of technology diffusion: Emergence | Growth | Maturity
Technologies involved : Blockchain (Hyperledger Sawtooth)
Areas of application: Chronic illness
Other players worldwide: Réseau d'expertise en éthique de données (ex-Blockchain Citiz) and Centre hospitalier de l'Université de Montréal (CHUM).
Contact: [email protected]
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KEYWORDS
Privacy | blockchain | cybersecurity | patient | self-management | self-sovereignty
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Blockchain and healthcare: use case for chronic disease self-management
Chronic disease data administration issues
Bibliography
- (1) - Agence de la santé publique du Canada - Prévalence des maladies chroniques chez les adultes canadiens. - Gouvernement du Canada. https://www.canada.ca/fr/sante-publique/services/maladies-chroniques/prevalance-adultes-canadiens-infographie-2019.html...
Standards and norms
- Blockhain and distributed ledger technologies – Privacy and personnally identifiable information protection considerations. - ISO/TR 23244 - 2020
- Blockchain and distributed ledger technologies – Overview of and interactions between smart contracts in blockchain and distributed ledger technology systems. - ISO/TR 23455 - 2019
- Blockchain and distributed ledger technologies – Vocabulary. - ISO 22739 - 2020
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